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Clinical Research


NDF sponsors scientific studies in the U.S. and abroad, by funding research proposals that advance the collective understanding of GNE Myopathy and facilitate the sharing of data among its consortium of experts on GNEM. Click here for a list of studies currently underway and being funded by NDF.

Since 2006, NDF has collaborated with esteemed organizations such as The University of California, Emory, Yale University, The Broad Institute, Ohio State University, Nationwide Children’s Hospital, and even the NHGRI/National Institutes of Health in North America. Among other places globally, NDF has historical relationships with Newcastle University in the UK, Hadassah Medical Center in Israel, National Center for Psychiatry and Neurology, Japan, as well as with academics in India, China, South Korea, Africa and Europe. 

If you are interested in submitting a proposal for our next grant cycle please visit this page.

Click here to learn more about the esteemed members of our Scientific Advisory Committee.





From l-r: NDF SAC member Dr. Monkol Lek (Yale University) presenting at our 6th Annual Symposium on GNE Myopathy in Philadelphia, NDF staff visiting a lab at Hadassah Medical Center while in Israel for our GNE Myopathy Symposium in Tel Aviv and CEO Lalé Welsh at NDF 2019 Gala presenting some of NDF's international team of scientists from around the world .