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What is GNE Myopathy / HIBM?

What are Some of the Symptoms?

Symptoms of the disease typically begin between the ages of 20 and 35, but in some cases it is even later. Below is a list of common symptoms:


Frequently tripping 

Difficulty in climbing stairs

Difficulty in getting up from a seated position

Difficulty in running

Loss of balance

Weakness in index fingers

Weakness in arms and shoulder

If you have some of these symptoms and would like to have an online diagnosis check the ALDA free diagnostic tool. (Note: this is not a substitute for seeing a physician, but can set you on the right path)