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Our Mission

NDF's mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach and funding critical research focused on treatments and a cure.

LEARN MORE ABOUT NDF

GNE Myopathy is also known as: HIBM,  Nonaka  Myopathy, Distal Myopathy With Rimmed Vacuoles,  Inclusion Body Myopathy 2,  IBM 2, Quadriceps Sparing Myopathy

Our Impact in 2019

  • Symposium/Patient Day Attendess

    220

  • Scientific Minds Engaged with GNEM & NDF

    38

  • Gala Attendees

    522

  • Donated & Pledges Dollars

    $3,187,000

Our community thrives when we work together. Discover how your help furthers our cause and supports our vital programs