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Our Mission

NDF's mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach and funding critical research focused on treatments and a cure.


GNE Myopathy is also known as: HIBM,  Nonaka  Myopathy, Distal Myopathy With Rimmed Vacuoles,  Inclusion Body Myopathy 2,  IBM 2, Quadriceps Sparing Myopathy

Our Impact in 2019

  • Symposium/Patient Day Attendess


  • Scientific Minds Engaged with GNEM & NDF


  • Gala Attendees


  • Donated & Pledges Dollars


Our community thrives when we work together. Discover how your help furthers our cause and supports our vital programs

News & Notes

Blog written by a non-GNE Myopathy patient about traveling in a wheelchair

The Neuromuscular Disease Foundation (NDF) will launch its annual Symposium on GNE Myopathy Speaker Series on Friday, May 8th, albeit in a much different format than in previous years. The series is designed to educate both the patient and scientific communities on GNE Myopathy, an adult onset muscle-wasting disease. The goal is to feature specific updates from all NDF grant awardees for the 2020 cycle.